Opportunity Information: Apply for CDC RFA DD22 2203
The CDC funding opportunity "Population-based Surveillance of Outcomes, Needs, and Well-being of Children and Adolescents with Congenital Heart Defects" (NOFO CDC-RFA-DD22-2203) supports a public health surveillance effort focused on children and teens who were born with congenital heart defects (CHDs). Rather than funding traditional research studies, this program uses a cooperative agreement model, meaning recipients are expected to work closely with CDC in planning and carrying out the project. The overall purpose is to strengthen understanding of how young people with CHDs are doing beyond infancy and early childhood, and to identify factors linked to unequal outcomes and health disparities.
The need for this work is driven by the fact that CHDs are the most common structural birth defects, affecting about 1 in 110 live births. Because survival has improved dramatically over the last few decades, there are now roughly 1 million children in the United States living with a CHD. Even with better survival, families and providers still face many questions about long-term outcomes as children age: how often they need specialty cardiac care, what other medical services they use, what barriers they hit when trying to get care, and how their condition affects daily life, school experiences, social participation, and overall quality of life. A particularly important issue is transition of care, meaning how adolescents move from pediatric systems into adult-focused healthcare in a way that does not disrupt needed follow-up.
A key problem the opportunity tries to solve is the lack of strong population-based data that follows children with CHDs over time. Existing national surveys, such as the National Survey of Children’s Health, do not provide enough detail to reliably separate congenital heart defects from acquired heart conditions, and they typically lack clinical and birth-related details like the specific type of CHD, timing of diagnosis, co-occurring birth defects, or factors such as prematurity. On the other hand, state birth defects surveillance programs can identify babies born with CHDs, but those systems usually do not continue tracking children as they grow. This creates a gap: there is a good way to identify a population-based group at birth, but limited information about outcomes later in childhood and adolescence.
The core objective of the grant is to use state-based birth defects surveillance data to identify a population-based sample of children and adolescents with CHDs and then gather more complete, real-world outcome information through surveys. Recipients are expected to contact and survey parents or caregivers about the child’s healthcare use (cardiac care and other services), barriers to care (such as access, cost, availability of specialists, transportation, and related issues), quality of life, and social and educational outcomes. The project also emphasizes understanding caregiver needs and experiences, recognizing that caring for a child with a CHD can involve ongoing coordination of appointments, emotional stress, financial burdens, and navigation of school and community supports. In addition to caregiver surveys, adolescents themselves would also be surveyed to capture their perspectives, especially around functioning, well-being, and readiness to manage their health as they move toward adulthood.
Administratively, the opportunity is offered by the U.S. Department of Health and Human Services through the CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD). It is a discretionary award using the cooperative agreement funding instrument, categorized under health, with CFDA number 93.073. The program anticipated about three awards, with an award ceiling of $400,000. Eligibility is broad and includes various government entities, tribes and tribal organizations, nonprofits (with or without 501(c)(3) status), public and private institutions of higher education, and for-profit organizations including small businesses, among others as specified in the announcement. The original posting date was March 29, 2022, with an original application deadline of May 28, 2022.
In practical terms, the intended end product is a stronger population-based picture of the lived experience and longer-term needs of children and adolescents with CHDs, grounded in birth defects surveillance identification and enhanced by direct caregiver and youth reporting. The information generated is meant to fill major data gaps, guide improvements in services and systems of care, and support more equitable health outcomes by helping public health and healthcare partners understand where disparities arise and what families need as children with CHDs grow up.Apply for CDC RFA DD22 2203
- The Department of Health and Human Services, Centers for Disease Control - NCBDDD in the health sector is offering a public funding opportunity titled "Population-based Surveillance of Outcomes, Needs, and Well-being of Children and Adolescents with Congenital Heart Defects" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.073.
- This funding opportunity was created on Mar 29, 2022.
- Applicants must submit their applications by May 28, 2022 Electronically submitted applications must be submitted no later than 1159 pm ET on the listed application due date.. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $400,000.00 in funding.
- The number of recipients for this funding is limited to 3 candidate(s).
- Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Public and State controlled institutions of higher education, Native American tribal governments (Federally recognized), Public housing authorities/Indian housing authorities, Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education, Private institutions of higher education, For profit organizations other than small businesses, Small businesses, Others (see text field entitled Additional Information on Eligibility for clarification), Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled Additional Information on Eligibility.
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Frequently Asked Questions (FAQs)
What is the name and ID of this CDC funding opportunity?
The funding opportunity is titled "Population-based Surveillance of Outcomes, Needs, and Well-being of Children and Adolescents with Congenital Heart Defects (CHDs)." The NOFO number is CDC-RFA-DD22-2203.
Which federal agency and CDC center are offering this opportunity?
This opportunity is offered by the U.S. Department of Health and Human Services (HHS) through the Centers for Disease Control and Prevention (CDC), specifically the National Center on Birth Defects and Developmental Disabilities (NCBDDD).
What is the main purpose of this grant program?
The purpose is to strengthen population-based public health surveillance of children and adolescents born with congenital heart defects by improving understanding of outcomes, needs, and well-being beyond infancy and early childhood, including identifying factors linked to unequal outcomes and health disparities.
Is this program intended to fund traditional research studies?
No. The program is described as a public health surveillance effort rather than a traditional research study program.
What type of funding instrument is used?
The opportunity uses a cooperative agreement funding instrument, meaning recipients are expected to work closely with CDC in planning and carrying out the project.
What problem or gap is this opportunity trying to address?
It aims to address the lack of strong population-based data that follows children with CHDs over time. There is a gap between identifying CHDs at birth (through state birth defects surveillance) and having reliable, detailed information about outcomes later in childhood and adolescence.
Why are congenital heart defects (CHDs) a focus for this surveillance effort?
CHDs are described as the most common structural birth defects, affecting about 1 in 110 live births. Survival has improved dramatically, and there are now roughly 1 million children in the United States living with a CHD, increasing the need to understand longer-term outcomes and service needs.
Why are existing national surveys not enough for this purpose?
The opportunity notes that national surveys (for example, the National Survey of Children’s Health) do not provide enough detail to reliably distinguish congenital heart defects from acquired heart conditions and often lack clinical and birth-related details such as CHD type, timing of diagnosis, co-occurring birth defects, and prematurity.
How will recipients identify the population-based sample of children and adolescents with CHDs?
Recipients are expected to use state-based birth defects surveillance data to identify a population-based sample of children and adolescents born with CHDs.
What kind of data collection is expected beyond surveillance system data?
The program expects recipients to gather enhanced, real-world outcomes information through surveys, including contacting and surveying parents or caregivers, and also surveying adolescents themselves.
Who is expected to be surveyed?
Recipients are expected to survey parents or caregivers about the child’s experiences and needs, and to survey adolescents to capture youth perspectives, especially related to functioning, well-being, and readiness to manage their health as they move toward adulthood.
What topics should caregiver surveys cover?
Based on the opportunity description, caregiver surveys are expected to cover healthcare use (cardiac care and other medical services), barriers to care (including access, cost, availability of specialists, transportation, and related issues), quality of life, and social and educational outcomes. The project also emphasizes understanding caregiver needs and experiences.
What topics should adolescent surveys cover?
Adolescent surveys are intended to capture the adolescent perspective, including functioning, well-being, and readiness to manage their health as they transition toward adult-focused healthcare.
What types of barriers to care does the opportunity highlight?
The opportunity specifically mentions barriers such as access issues, cost, availability of specialists, transportation, and related obstacles that may prevent consistent and timely care.
What does the opportunity mean by "transition of care"?
In this context, transition of care refers to how adolescents move from pediatric healthcare systems into adult-focused healthcare in a way that does not disrupt needed follow-up.
What longer-term outcomes is this program trying to better understand?
It seeks to improve understanding of how children and adolescents with CHDs are doing as they grow, including specialty cardiac care needs, other medical service use, barriers to receiving care, effects on daily life, school experiences, social participation, overall quality of life, and transition-related readiness and continuity of care.
Why does the opportunity emphasize caregiver needs and experiences?
The description recognizes that caring for a child with a CHD can involve ongoing coordination of appointments, emotional stress, financial burdens, and navigation of school and community supports, making caregiver experience an important part of understanding needs and outcomes.
How does this opportunity aim to address health disparities?
The program’s purpose includes identifying factors linked to unequal outcomes and health disparities, using improved population-based information to understand where disparities arise and what families need as children with CHDs grow up.
What is the intended end product or deliverable from this work?
The intended end product is a stronger population-based picture of the lived experience and longer-term needs of children and adolescents with CHDs, grounded in birth defects surveillance identification and enhanced by direct caregiver and youth reporting. The information is meant to fill major data gaps and guide improvements in services and systems of care.
What is the CFDA number for this opportunity?
The CFDA number listed for this program is 93.073.
How many awards were anticipated and what is the award ceiling?
The program anticipated about three awards, and the award ceiling was $400,000.
What is the general category of this funding opportunity?
The opportunity is categorized under health and is described as a discretionary award.
Who is eligible to apply?
Eligibility is broad and includes various government entities, tribes and tribal organizations, nonprofits (with or without 501(c)(3) status), public and private institutions of higher education, and for-profit organizations including small businesses, among others as specified in the announcement.
When was the opportunity originally posted and when was the original application deadline?
The original posting date was March 29, 2022, and the original application deadline was May 28, 2022.
How will the information generated by this program be used?
The information is intended to fill major data gaps, guide improvements in services and systems of care, and support more equitable health outcomes by helping public health and healthcare partners understand outcomes, needs, and disparities affecting children and adolescents with CHDs.
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